Today is World Mental Health Day, which is fitting, since two days ago I ran a half-marathon, raising over £800 for Mind, the mental health charity. I am incredibly thankful to everyone who sponsored me - I feel very humbled by your generosity and very also pretty proud of myself for having done it. There's still time to donate, if you wish: here.
Last World Mental Health Day I publicly posted for the first time about having type 1 bipolar, and I wanted to take the opportunity again to be open, honest, and giving about my illness in a way that I hope will inspire and help others.
I do a fair bit to keep myself healthy - I take my medications everyday. In fact, I take meds three times a day, because that's what works best for me. I run, and I meditate sometimes (but do neither as much as I should do, really). But I also do a fair bit that isn't very healthy, which is mainly out of circumstance, rather than desire. For instance - I love my job, and what I do, but sometimes I really do buy into the workaholic-academic myth. And my commute doesn't do much good for me either, because the time I have with my family I spend with them, and don't always take as much time for myself as I should (see the point about not running or meditating as much as I should).
Over the last year, my anxiety has got worse as well, and a part of this is residual trauma that I've associated with certain spaces, particularly in and around London. I'm also struggling to shake the inherent anxiety of precarity, which I got so used to feeling. Sometimes I have to sit myself down and remind myself I actually do have a full time job now.
I've become - and continue to become - better at recognising myself, and when I might be at risk. And with that recognition has come the ability to catch moods or panic early and do some quick restorative work.
Despite everything that has held me back - not just bipolar and anxiety, but the parenting, and general self-care - I think I've done really well this last year. Which is to say, I'm doing my best, and it turns out - my best is pretty damn good.
I love you all. Thank you for your support and kindness.
I have been thinking recently about how much of myself I should be giving away in job and grant applications. This has come because I am working on an ERC Starting Grant application. I have no idea if I am good enough for one, but this is the first year I'm eligible and the last year that the UK might be able to apply. And honestly, I think the experience of writing a huge grant proposal will be good for me. But, the thing is... I don't think I've quite done as much as I might have done regarding being excellent.
I finished my PhD as a single parent, in the middle of a serious manic episode. I struggled to get my bipolar and anxiety under control. I've struggled with the side effects of medication. In the midst of that I published an article in a pretty good journal. I got two book contracts. I've submitted another article. I am by no means prolific, but... that's not too bad.
Here's why I struggle with this.
1. In my life, this is normal. This is my normal. I have done everything I could do, within reason. For instance, I would have loved to go to Fondation Hardt, like many of my PhD cohort (and my now-husband) did. But, I had a kid that relied on me to be in London. How much of that should I get a pass for? I did other things, that were closer to home. Like chairing a year-long seminar series in London. At home.
2. I don't want to make a 'benchmark' for good, or decent, or excellent for people who have stuff going on. 'Oh, well X also has acute anxiety and has produced two more articles than Y', 'Z also had a child and finished their PhD 3 months before X'. I hope you see where I am going with this. But then, by not declaring, aren't we saying that the benchmark for everyone is the same? When it shouldn't necessarily be. X might have a parent who suddenly needs significant care, and it falls to X to take that on. How do we compare near 24hr care of a parent for 6 months (for argument sake), to the small-bits-a-day of self-care required of someone who has a schizoaffective disorder? Or myalgic encephalomyelitis (also called chronic fatigue syndrome)? We can't have two benchmarks (i.e. one for 'normal' people and one for (what?) all other people). We can't just have one benchmark, because some people have overcome significant things to achieve. I obviously don't have an answer.
3. As much as I would like to think that saying all this in a job or grant application would be taken in the spirit it is meant (i.e. here's what I've done, and here is the context of my life) it might be taken as a mark against me ('this person might have another serious manic episode' 'this person might have another child' 'this person might develop serious side effects and require sick leave'). I would never have a way of knowing, but it's a scary proposition.
The Pros List (I think the cons are obvious)
Anything I can do to destigmatize mental illness is a good thing. Calling my mental illness a chronic invisible illness demonstrates (I hope) that I treat it as a serious, but manageable (and managed) illness that would be like managing any other non-life-threatening illness. It also says (again, I hope) that I am not ashamed of having bipolar.
So. I don't have an answer. I suppose I will probably end up writing two versions of the statement and see which one passes though the research office.
Future job applications - again, totally undecided.
What an unsatisfying end.
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I have Type 1 Bipolar. I ‘outed’ myself last October on World Mental Health Day. Since then, I have spoken candidly about various aspects of having bipolar and a panic disorder, but these have usually been fleeting bursts on Twitter. Until now I have not committed anything to the permanence of this site, partly because being open in a post that can be called and recalled by anyone, at any time, is scary and worrying. I am on the market for a permanent academic job, and I am obviously concerned that this will negatively affect that endeavour.
I am worried about the stigma of having a chronic mental illness. Will I be able to be ‘open’ about my diagnosis until the stigma is gone? No. Will the stigma be lifted unless people, like me, are ‘open’ about their diagnoses? No. It’s a vicious cycle. To break it, I have to step forward and be open. This is the small thing I can do to help.
Living with bipolar isn’t easy. Twice a day I take my medications, I will take these for the rest of my life. Perhaps not these exact ones, because that’s the thing about medication for chronic illnesses (of all kinds, not just mental illness) – sometimes they stop working the way you want them to work. Everything I do is a balancing act. If I do x, I will feel like a. That means that I might not be able to do y later on. It’s Spoon Theory. Do I need to go to the supermarket with my 5-year-old? That will take four spoons. If I can go on my own, it will be two. Do I have to take the 6:55am train to Leicester to make a meeting with a student? That will be one additional spoon than taking the 8:56. If Kiddo doesn’t sleep well tonight I will need an extra five spoons, so do I want to keep three in reserve – that means it will only cost two of tomorrow’s spoons. You get the point.
Even though I take meds, I still experience the fluctuations of my mood disorder. They obviously aren’t as pronounced as if I wasn’t taking medication. I have learned to match my work to these – when I am ‘up’ I produce new research and do as much teaching preparation as I can. When I am ‘down’ I edit – I am brutal and mean, and the comments I leave on my own work are sometimes heartbreaking. When I am ‘even’, I submit work. If I can help it I never push ‘submit’ while I am up or down, because even though these are very mild versions of mania and depression I am still not as measured as I would like to be when I do the final checks of a manuscript or abstract.
This is not a glorification of bipolar. Yes, I did write tens of thousands of words in a manic frenzy during my PhD, but I also completely neglected my own health and let my marriage crumble around me. I have – like anyone who faces a chronic illness – learned how to work with myself, rather than fighting against myself.
It doesn’t always work, and I am particularly bad at preventative ‘self-care’. My ability to recognise when I need to break out of my bubble is dulled and broken. Fighting this is something I will be doing forever.
I am not bipolar. I have bipolar. That’s an important distinction. And over the last six months, I have forced myself to come to terms with having a lifelong invisible illness, a disability. It has made it easier to be open. But it will always be an uphill battle, and I will always be fighting a war against myself – I just hope for more, longer, periods of peace.
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